Family need funds for treatment options not available on NHS
There is currently no cure for Albie's condition
The Acton-based family of Albie, who celebrated his fifth birthday last month, noticed recently that he was falling over and getting tired more easily.
They say that as an only child, Albie has naturally been the centre of his parents’ lives and a beacon of fun and happiness to those around him.
The ‘wonderful, funny, sparky, Spiderman-loving son, grandson, nephew, cousin, and best friend’ was taken to the GP who referred Albie to hospital.
The diagnosis was that he had diffuse intrinsic pontine glioma (DIPG ) a very rare and aggressive brain tumour, for which currently there is no cure.
Family and friends have now set up a GoFundMe page to raise money for treatment options for Albie, which can hopefully suppress the growth of tumour (but come with a monthly cost of circa £4000, and are currently not funded by the NHS).
Albie is currently undergoing radiotherapy and it should be known in a few weeks later whether the tumour has shrunk.
They are also hoping that the money raised will enable Albie's parents to be able to look after him and spend as much time with him as possible, without worrying about life expenses and bills.
So far over £18,000 has been donated towards a target of £50,000 with one anonymous donor giving £3,000.
If you would like to make a donation click here.
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February 10, 2022